Hartford Marathon

On Saturday, October 15th Vinnie Dejana will run the Hartford Marathon in support of  Kennedy and the CORD Foundation.  As a friend of Kennedy’s family, and father of two young daughters himself, Vinnie wanted to do something to recognize the strength and resilience he saw in Kennedy.  Vinnie wanted to utilize his efforts in running the marathon to support a great cause and to help find a cure for pediatric spinal cord tumors.

Please show your support of Vinnie and the CORD Foundation by making a tax-deductible donation using the button on the right.

The affect of spinal cord tumors varies greatly among those afflicted with the disease.   The following information is provided to increase your knowledge and understanding.   This is by no means a comprehensive list, but hopefully is a start.

Frequency:

  • 1.1 cases per 100,000 persons
  • Approx. 15-20% of CNS tumors occur in the spine
  • Intramedullary lesions comprise approx.. 2-4% of all CNS neoplasms, occurring in both the pediatric and adult population
  • The tumors occur anywhere from the cervicomedullary junction to the filum terminale though most frequently found in the thoracic cord.

Symptoms:

  • Symptoms are not specific to spinal cord tumors and may be present in any myelopathic process
  • Because of the slow-growing nature of the tumors, symptoms precede tumor discovery an average of 2 years.
  • Pain often is the earliest symptom, characteristically occurring at night when the patient is supine
  • Pain may be local or radiating
  • Progressive weakness may occur in the arms or legs
  • Patients may have impaired bowel or bladder function
  • Impotence may occur
  • Patients may have poor balance
  • Symptoms of subarachnoid hemorrhage may be present

CORD Foundation Awards Grant to Dr. Jane Johnson

January 6, 2011

Jane Johnson, PhD UT Southwestern Medical Center The Nichole Silversteen Research Chair recipient The CORD Foundation is thrilled to announce Dr. Jane Johnson as the recipient of The Nichole Silversteen Research Chair.  As a result, the University of Texas Southwestern will receive $300,000 over the next three years to fund her research project entitled, “Spinal Cord Progenitor Cells: Distinct Molecular Characteristics [...]

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CORD Foundation Awards Grant to Dr. Sockanathan

January 6, 2011

Shanthini Sockanathan, PhD Johns Hopkins University The Kennedy Snyder Research Chair recipient The CORD Foundation is thrilled to announce Dr. Shanthini Sockanathan as the recipient of The Kennedy Snyder Research Chair.  As a result, Johns Hopkins will receive $300,000 over the next three years to fund her research project entiltled, “Molecular Mechanisms of the Glial Specification and Differentiation in the Spinal Cord.“  [...]

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Steven’s Story

January 6, 2011

Steven is 17 and the second of five boys in his family. He has always been a great guy with drive and ambition, honesty, and straight A’s. Most importantly, he has a great big, kind heart. Steven was 16 in the spring of 2007. He was enjoying a workout with his friends from DeSmet Jesuit High [...]

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Nichole’s Story

January 6, 2011

It was summer 2003 and Nichole was living with friends at the New Jersey Shore. Having just turned 21, she was getting the most out of the beach and the happy hours when her right leg became numb and difficult to control. As the numbness began to creep up her right leg and to her [...]

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Kennedy’s Story

January 6, 2011

Kennedy has always been a happy, social child.  But, soon after the arrival of her little brother, when she was just two years old, Kennedy began waking up at night screaming in horror.  On car rides she would begin screaming that her neck hurt and she was inconsolable.  Doctors maintained that it was a cry [...]

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Malia’s Story

January 6, 2011

At 2-years of age, Malia was diagnosed with an intramedullary astrocytoma, a tumor within her spinal cord. Despite two surgeries within 10 months, surgeons were unable to remove the entire tumor. Because the tumor cells had so infiltrated the tissues of the spinal cord, full removal would have resulted in neurological damage ranging anywhere from minor sensory loss [...]

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